Tuesday, September 29, 2009

Alopecia Aloschmeesha!

Ryan's hair... When Ryan was one, we started taking him to get his hair cut at my beautician, Joni, who had a shop in her home. His first cut with her consisted of me holding him on the floor while she cut one side of his hair, then I flipped him over for the other side... Little did we realize what a struggle his hair would become.... The below picture is nothing. His hair is much longer than mine now and his father and I don't mind too much anymore. It's better than what it HAS been...
When Ryan was three, Joni noticed a bald patch on the top of his head and asked if he'd gotten a hold of scissors or a razor. Nope... We discovered that he had Alopecia Areata, which means loss of hair in areas of the body. The clinical reason for this was that he had some stress in his life and it was coming out thru his hair... Or at least that's what it said in Joni's hair manual. We disagreed. The only stress was that his sister had just been born...

He eventually lost all hair on his arms, back and legs and at one time only had a half of an eyebrow. He kept most of his hair on his head, but at times it was pretty obvious. Sometimes it would grow mostly in, then one morning a bunch of loose hair would be on his pillowcase and it would start all over again on a different side of his head.
As time went on, Joni moved and we had to take him to a cheap hair cutting place and they spouted off the entire paragraph that they had learned in beauty school. "What kind of trauma has he been through?" We explained his sisters birth... But I'm pretty sure that's not it...

We took him to specialists and dermatologists who prescribed or "practiced" on him. Apparently we hit every specialist who had never had a patient so young with this condition. They prescribed meds that made the bald patches red and irritated, so much so , that Ryan called his bald spots holes. He hated those meds! This had nothing to do with nutrition. Not too many hotdogs or mountain dew...

We got a hold of some Rogaine thru a prescription (at that time) and started applying it daily. We were not going to let him lose his hair until he was 18 and wanted to just shave it off. The insurance company gave us some flack saying that they couldn't cover the cost of Rogaine since it was for cosmetic purposes. I believe I started crying on the phone at that time and stated that my son was 3 years old... This wasn't a cosmetic thing in our eyes. We didn't want him made fun of at preschool... They changed their minds.
As he grew, he discovered various ways to deal with strangers curiosities. Not the right way at first. At first whenever anyone commented on his hair, he took it wrong and ended up in several playground fights. Threw a glue bottle and broke the glasses of a boy in 5th grade that is now one of his roommates...

We talked with him and gave him some new ideas on how to explain his condition. He then started telling people in a joking manner that a bird had pecked off his hair, or his little sister shaved him while he slept, etc. But when he told a new teacher that he had cancer, we had to talk with him again... His sense of humor was developing, that's for sure!
He grew to hate swimming and didn't want to go with us to the pool anymore. It exposed his scalp too much and he didn't like looking "uncool" with girls around.

Since the cheap cuts places every single time asked what type of trauma he'd had, we switched to a local barber with a shaky hand... He must be 90, but wow, he could cut Ryan's hair so it fell over the spots and looked really natural, unless of course it was windy or rainy.

At one bagpiping event (my husband plays), they gave out bagpipe temporary tattoos. Ryan put one on his bald patch. People thought he shaved that spot on purpose for the tattoo. He used about 10 for a couple weeks. My crazy brother thought that Ryan should have his whole scalp tattooed with wires and crazy exposed things like that, so when hair fell out, it would look like he was a cyborg... Ryan wanted to do it, but we put a stop to that. No tattoos!!! Especially on your head!
Ryan hasn't seen any barber since the summer of 2008... He had really been fighting us on hair cuts. We held it over his "head" for everything... If he failed a test, if his grades dropped, if he didn't stop hanging out with certain people... He was destined (in his mind) that he would look awesome in dreadlocks. Not sure on that... We won a couple times, but when he went thru the really rough time that fall & winter of 2007-08 and we pulled him out of public school to homeschool, we let him do what he wanted with his hair.

We figured a girl would someday ask him to cut it for her. He'd do anything for a girl. Throw himself into a wall, act like a monkey, whatever it took to get her attention...
Above is Ryan and Maddy. They seem so happy together and wow, did she idolize her big brother.
In this picture... not so much... Maybe younger sisters DO cause stress...

13 comments:

Bow Cheeky Creations said...

Some girls like long hair. Glad he has a good sense of humor. Kids at school can be so mean.

Pam said...

My daughter had alopeca in 5th and 6th grade. Chunks and chunks fell out. Hers was actually caused by stress.
I had to buy her a hat to wear to school.
Whenever she gets really stressed, her hair begins to fall out again.

Macey said...

That would've scared the crap outta me, seeing his hair fall out! Poor guy! Now it looks like his hair is nicer than most girls'!

Elle Bee said...

What a rough go of it he had. Kids can be so mean! His hair is so awesome in that first photo. I'm a little jealous. :o)
Elle

LenoreNeverM♡re said...

I'm sure this ordeal made him a stronger young man! Support from family is so important & of course great sense of humor always helps...
xo*

Anonymous said...

Bald is sexy! That's all that he needs. I feel so bad that he had to go through that. And you did the right thing about taking him out of school. How long is his hair now?
You are a great mom and I did have to snick when he said he had cancer. You can't blame him for getting sick of it.

McVal said...

His hair wasn't the reason we took him out of school... email me sometime if you want a book! It all started when he turned 16 and got his drivers license...

Amanda said...

Wow... this was such a roller coaster!! You had me laughing and crying and sad and happy... sounds like you have a pretty amazing kid.

Thank you so much for sharing this...

Many blessings-
Amanda

Brandi said...

Awww, bless his heart. He has some great hair now, though!

Southern Gal said...

He does have a great head of hair. Seems you all have handled it with grace.

Yes, younger siblings do cause stress.

Flat Creek Farm said...

What a wonderful head of hair (and a handsome young man, may I add). I'm sure alopecia was a struggle to grow up with, but sounds like all of you handled it exceptionally well. And, just look at those gorgeous locks now! -Tammy

Helene said...

It sounds like he's developed a wonderful sense of humor, which is a great way to deal with something like this.

I love the last picture of the two of them. My kids squabble like that all the time in the car!

The Old Parsonage said...

What a shame that he had to go through all of this. It's hard to hear someone to say it doesn't matter, when we all have fit over how we ourselves look.
I'm glad that he has become his own man in dealing with it. Our oldest has beautiful hair and shaves his head. Who knows:)

I know hat younger brothers can cause stress:)

Leann

LinkWithin

Related Posts with Thumbnails